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Reflections from RuthAnn Lobo

Kind looks, kind words, kind acts, and warm handshakes-these are secondary means of grace when men (and women) are in trouble and are fighting their unseen battles. - John Hall

The hospital floor was quiet with the exception of an occasional padded footfall by a nurse efficiently going about her duties on the evening following my surgery. The aromas of the supper hour had long since succumbed to the crisp, antiseptic smell that lingered in the visitor’s nose beyond the elevator and into the parking lot. The lights in my room had been lowered as I lay in bed with my thoughts of what had been and what was to come.

Breast cancer. Not in my wildest dreams had there been room for, or the possibility or expectation of breast cancer. Neither my plans nor my hopes for the future held even a consideration of breast cancer. And yet there it was. Suddenly. Without warning....the great interrupter of life. As my hand explored the bandage where once my breast had been, I thought about how my life would never again be the same.

She appeared in the doorway of my room. Her uniform was much more casual than the white, crisply starched cap and dress that identified the nurse in my childhood storybooks. Her face was kind, her voice friendly as she engaged me in conversation. Her mother had been diagnosed with breast cancer and had undergone a mastectomy as well as chemotherapy; she had lost her hair and purchased a prosthesis. The good news was that her mother was well; she had survived the surgery and the treatment and was getting on with her life. Hang in there she said. Let me know if you have any questions. Her words of hope hugged me tightly as I drifted off to sleep.

She was one of many in a long line of healthcare professionals who recognized that my needs on my journey towards wellness exceeded routine physical care. She recognized that my emotions were as much in need of a loving word as my body was of the chemotherapy that was to follow.

It was five days after the removal of my breast that I learned twenty-eight out of thirty- three lymph nodes had tested positive. The oncologist had scheduled me at the end of the day so that there were neither interruptions nor a sense of hurry as she outlined my choices of treatment. She patiently repeated the information that tumbled over my horrified and denying ears . She patiently answered question upon question as I struggled to find a thread of hope in the message before me. Stunned by the news, I traveled home in a state of shock that quickly transgressed to fear and then depression. But I kept replaying one glimmer of hope I had heard during the afternoon’s visit. My oncologist had repeatedly referred to the treatments currently available in 1994 and then she had clarified, “I keep talking in the present tense because things are changing so rapidly in the treatment of breast cancer that we don’t know what new and better treatments are on the horizon.”

It was obvious that I was in trouble. I didn’t need statistics to tell me that. A later visit with my surgeon resulted in an agreement to avoid statistics and to focus on the best pathways to healing. “As of today you are cancer-free,” he said, “but you need as much chemotherapy as you can get. Besides, the only thing that matters in statistics,”he continued, “ is which end you are in.” A ray of hope. I wanted to hug him. In fact, I think I did hug him. He encouraged visits to several well-know cancer centers in order to consult with some of the top people in the field.

My first consultation was with the administrative nurse responsible for the supervision of clinical trials at a well-known hospital in Hartford, Connecticut. She outlined the clinical trial available to me. Her professional manner and obvious knowledge fostered my trust in her expertise, but it was her soothing voice and caring tone that quieted my nerves and made the treatment that loomed ahead less frightening.

I traveled for a basis of comparison to a well-known cancer hospital in the east. It was crowded and bustling: efficiency invisibly stamped on each step of the process from entry, testing, to examination. An effort had been made to increase a patient’s comfort level through color and plantings in the large waiting area, but it could not mask the sorrow of parents holding bald and sickly children. The first doctor I saw whisked into the examining room with my records in tow. He asked pertinent questions which have since been forgotten, but his nervous mannerisms remain lodged in my memory. I kept wondering if he was more fearful of my prognosis than I was. He was followed by a second specialist whose likeness to Orville Redenbacher, right down to the bow tie, was so striking I had to keep myself from smiling. He reviewed his recommended protocol which was identical to that outlined for me in Hartford. Comforted by the knowledge that my proposed medical treatment in Connecticut was the best available, I headed for home, but not before Orville’s likeness offered one last lingering comment. “On a positive note,” said he as my eyes focused on his bow tie, “ Yours is the kind of cancer that chemotherapy goes after.” It was the most important thing I heard that afternoon.

I remember clearly my first visit to the cancer center in Hartford. I was scheduled to meet the nurse who would administer the chemotherapy prescribed by the clinical trial in which I had agreed to participate. Summoning the inner strength to face the unknown that lay ahead, I entered the cancer center. I was struck by the friendliness of the people I encountered. The parking valet greeted me not with a look of pity but with genuine warmth and kindness. The receptionist magnified her sincere offer of assistance with a heartfelt smile. Fresh flowers were a reminder that after the cold of winter comes the promise of spring. I was given a tour of the facility and shown the rooms where I would undergo treatment. I was introduced to the nutritionist and the social worker. And I spent time with the nurse who would stand by my side with words of explanation and encouragement through three months of treatment; the same nurse who would later tell me that her grandmother had had the same lymph node involvement as I had and was, so many years later, still alive and leading a wonderful life. My wounded emotions were caressed with every smile and word of hope that I encountered that day; I left knowing I was in very good hands.

As the healing process unfolded, I became ever aware of the delicate bond between medical treatment and its delivery. Never doubting that my treatment was the best available, I discovered a growing appreciation for those who innately knew that I was battling unseen demons as well. Careful never to breach the fine line between professionalism and intrusion, they managed through a look or a word to impart a message that said,“We are in this together.” Bone scans, mammograms, x-rays delivered routinely without the slightest suggestion that a woman missing one breast is in any way out of the norm. Blood tests given with regard to which arm can or cannot be used. Shared stories of remarkable recoveries, life after cancer, countless survivors. Tips on healthy lifestyles... great buys on wigs.... .

I think often about those who are in the healthcare profession. I marvel at their ability to confront the adversity of others day in and day out while providing care and a sense of dignity. I thank them for every smile, every word of encouragement, every comfort they have offered. I thank them for the gentleness shown to the woman who is frightened by her first mammogram; I thank them for the sensitivity shown to cancer survivor who relives her diagnosis each time she returns for a check-up. I thank them on behalf of every patient who may not remember their names but who will never forget their acts of kindness. I thank them for providing the most important gift of all.... the promise of hope.







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